Tag Archives: helphopelive.org

Charlie the Star

8 Nov

Hi Everyone.  Nope we haven’t disappeared, just been incredibly busy with school, doctors appointments, church, illnesses…..so much going on.

Let’s see if I can fill you in on some of the things that have happened since I last posted. Charlie has been in the school newspaper and on TV  both times advocating for the disabled.  Here is the link to the Newspaper Article, it’s the School Newspaper, The Ranger  http://issuu.com/theranger/docs/combined_pdfs_10-4-13_revised?e=0/5180435

This article was in the paper on October 4th.  He was also on TV earlier this week, here are the links for that: On your desktop: –> http://bit.ly/1hhUtQk
ON your phone: –> http://bit.ly/1b3XApV

Charlie also got an email from the college.  Each year they look at the Spring and Fall semester prior to the current one and see what everyone’s GPA is. Students with a 3.5 or better get to walk the stage and receive a certificate for their achievement. Charlie had a 3.5 so he will be walking the stage on November 20th!  What a surprise that was.

Things have been going okay.  Charlie had trouble at dialysis and bled for 3 hours.  He had to go for an angiogram on Wednesday.  The found a narrowing in one of his arteries, it was fixed with a balloon treatment. He seemed to be doing okay after the surgery and no bleeding at dialysis yesterday.  We were all set to go back to school today (he was out sick on Monday, procedure Wednesday) and Charlie got sick as we were heading to the door. We didn’t go anywhere today.  Hopefully we will have better luck on Monday!

We have scheduled our first fund raiser for Sunday, December 8th at 12:30.  We are having a spaghetti dinner.  Spaghetti with or without meatballs (for those who don’t do meat), Salad, Dessert, and choice of coffee, tea or lemonade. $5 per person, $12 per family.  You can purchase your tickets by contacting Sherrie at (210)859-8085.  To purchase your tickets online go to: http://bit.ly/SpaghettidinnerCharlie

Well, that’s pretty much it for now.  Thanks for sticking with us through all of this.  Please continue to pray for the kidney.  If you know anyone who might be interesting in donating one please give them our contact information.

Blessings to each of you.

Charlie & Sherrie

The Proposal

28 Sep

Charlie’s latest English assignment was to write a Narrative Essay on an “aha” moment in his life.  He chose to write about his decision to propose to me and how he did it.  It was fun writing it as we relived some moments and talked about it.  Anyone who would like to take a look at it can go to YouTube and type in Charlie’s Proposal to Sherrie.  It was taped because only one of our children and her family were able to be here for the momentous occasion.  It was put on YouTube because both of us have families living out of state and we wanted to share it with them.

Charlie is doing pretty well in school, with the exception of the Listening Quizzes in Music Appreciations.  He does well on the tests as they are multiple choice.  The Listening Quizzes are short quizzes where he has to listen to excerpts of music that the professor plays, then he has to answer a question about it.  Things such as the name of the composer or the name of the piece. For some reason those quizzes have been difficult for him.  He has gotten better at being able to identify instruments in the pieces.

It was an okay week this week.  Charlie was sick on Wednesday but is doing much better now.  He had some kind of a stomach bug and slept the majority of the day.  The rest of the week went well.  Friday was kind of weird because we got our early to go home and take a Music Appreciation test that had to be done online.  All quizzes and tests for that class are done online.  No big problems at dialysis this week which was great.

The American Kidney Fund from Washington, DC called Charlie again on Wednesday and asked him to speak on Sunday, October 6th, at the Kidney Action Day event here in San Antonio.  It will take place at the AT&T Center.  They want him to talk about Kidney disease and share his story. He said yes so that’s on the books for that day.  Not sure what time he is speaking but when we find out I will share that information with y’all.  It’s exciting and he is really looking forward to it.

His foot is doing okay.  Haven’t looked at it today yet.  Hopefully all is still well under the dressing.  We just need that to heal up and stay healed.  It’s so disappointing that it opened again. The air cast is so awkward for Charlie.  Earlier this week he was stepping up on the sidewalk and wound up down on one knee. I told him that he didn’t have to propose again.  🙂 He got up but he seems to have a balance issue when he’s wearing it.  Hopefully he won’t be in it very long.  He sees his wound care doctor on Monday so we can see what the plan is going to be.

We have church in the morning, choir has started back up for Charlie and he is looking forward to singing again. Sunday School is always a pleasure.  We are studying the book of Daniel and then we are going to start on Revelation.  It’s been interesting.  We had our movie night last week and it went pretty well.  Next month we will show “The Book of Esther”, I hope those of you who are here in the area will consider coming.  It’s FREE.  This ministry means a lot to Charlie and he is trying to figure out how we can have better attendance. Anyone have any ideas?

That’s pretty much it for now.  Hope each of you have had a great week and pray that this week is full of blessings for all of you.

Please pray for the following:  1. Charlie’s foot.  2. Charlie’s kidney.  3. School.  4. Finances. 5. Fundraising.

Blessings to all.

Charlie & Sherrie

Excitement here….

17 Sep

Recently we received an email regarding a man in South Carolina who took to the streets to try and find a kidney for his wife.  He actually put on a sandwich board and walked the streets trying to find a kidney.  Eventually they did get one.  Well, at church this Sunday someone told me that she had emailed me the information about this man.  She had seen it on the news but didn’t have a lot of information.  So, I was interested and googled South Carolina man gets kidney for wife.  There it was.  The article.  I read it and then I took the time to comment on the article.  I told them of Charlie and his wait for the last 9 years.  I figure share it and someday someone will see it and maybe he will finally get his kidney.

Tonight I came online to check email before I went to bed and low and behold, there was an email from a woman in Virginia who would like to DONATE HER KIDNEY TO CHARLIE!  I have emailed back to her and gave her our number so that we can connect her with the Texas Transplant Institute Live donor program.  She apparently was in the process of being tested to donate to a family member when her sister was a match and they did the transplant for the family member today.  We are praying that this is the kidney that God has for Charlie.  I cried as I read the email.  Maybe we are finally here??  We will see.

Now we have an even more immediate need for fundraising.  If any of you have any ideas please let me know.  I spoke with our counselor at Help Hope LIve this afternoon and she said if there was anyone interested in doing anything just have them contact her and she would walk them through the fundraiser.

Tomorrow Charlie has to do dialysis again. Please keep him in prayer as this will be tough on him, he had dialysis today too.  Then he will have Thursday and Friday off.  We both are so looking forward to the day when he doesn’t have to do things like this as it’s just so hard on his body.

Blessings to all of you.

Sherrie

Confusing Week…

16 Sep

Well, we made it through Monday. Charlie had a Theatre quiz this morning which I think he did pretty well on.  The Music Appreciation listening quiz, not so well.  It’s difficult to change a pattern.  When most people sit down to listen to music they listen to the words.  The thought of listening to the instruments and the style of the music don’t really cross the mind.  The Music Appreciation class is designed to teach students how to listen to music.  Charlie is starting to get it.  He was watching something last night and started naming the instruments in it.  Good sign, guess that means he must be learning something from the class!  Please keep it in prayer though because he has a long way to go with this one.  English class is still writing.  The next thing he has to write is regarding a moment when something became clear to him (an aha moment).  That should be an interesting essay.

The rest of this week is going to be kind of confusing.  Tomorrow will be dialysis and then again on Wednesday. He had to do it that way so that he can be with me for the Social Security Disability hearing on Thursday.  Our daughter is going to come and get us for that.  Charlie and Kim will not be able to join me.  It will be just me, the judge, the lawyer, a physician and a vocational expert.  Apparently the room is not big enough for Charlie and Kim to come along for moral support.  Please pray that this hearing goes well.  We have been waiting for this for a year now (filed in May 2011, rejected twice, hearing filed for in September 2012).  Glad it is finally here and that it will be over soon.  Both of us are praying that I get it because then things will be a little easier and we can finally start paying off the bills we are behind on.  The other thing we are looking forward to is for me to be able to go and see a doctor without having to use the Emergency Room.  I have not had a regular doctor since 2011, it’s been a real pain when I need to see someone or get a prescription refilled.  The social security will allow us a little breathing room and it will definitely make Charlie feel a little better about financial things.  We should know the decision withing no more than 2 months.

Saturday is Movie night.  Those of you who don’t know, Charlie started a movie ministry at Oak Ridge Baptist Church about a year and a half ago. He shows family friendly movies on the third Saturday of every month.  Doors open at 6pm and the movie starts at 7pm.  Admission, popcorn and lemonade are free. We have pizza available for $1.00 per slice. We also have door prize giveaways at the end of the movie.  It’s a great time of fellowship and entertainment.  If you would like more information you can email us at oakridgeafterdark12@gmail.com or call Charlie or myself at (210)859-8085.  The movie night  day is always a busy one.  Charlie does dialysis, then comes home and naps for a bit and then it’s off to the movies!   It is a lot of work but it’s well worth it in the end.

Our weeks are usually pretty booked, and usually they are pretty consistent as far as days and times go, but this week will be a little mixed up.  We are going to have to miss another day of school (Wednesday) so that we can make the change for the hearing.

Oh and then we have the foot.  Charlie has been walking a bit and on Friday night he had said his foot was hurting.  He felt what he thought was blood on his sock and asked me to look at it.  No blood but it was really wet.  I took the sock and the dressing off and low and behold, the foot had a huge spot that had blistered.  The blister was around and under the old callus.  I cleaned the area and then debrided it..  I think we are going to have to make a trip to wound care as the stuff the was coming out was from under the callus.  I am hoping that does not mean that there is a new wound developing at that site.  I redressed the wound and then checked it yesterday, so far it looks okay, but I think we are going to schedule the appointment to make sure.

Never a dull moment here that’s for sure.  We are both looking forward to the Kidney Action Day walk on October 6th. That’s a Sunday.  It will be at the AT&T Center.  Lots going on there.   (This information is from the American Kidney Fund flyer) Kidney Action Day is all about YOU and YOUR health. Join us at the AT&T Center for free kidney health screenings*, healthy cooking demos and healthy food samples, interactive fitness demos, local entertainment, children’s activities, and our Kidney Action Day Walk. Charlie was contacted by the American Kidney Fund regarding using his story, we will let y’all know what happens with that when we know more.

Okay, it’s almost midnight and I still have to do the dishes (I fell asleep after dinner), but I wanted to get this off to y’all so you could be in prayer for this week.  I know I have said it before, and I will say it again,  y’all are wonderful.  Your prayers and words of encouragement are what keep us going on this walk and wait for that kidney.  We believe that God already has it waiting for Charlie, and that in His time he will reveal who has it and where.  We are waiting for that to happen but we know that we need to be preparing for it.  We are trying to brainstorm ideas for fundraising and need some help.  I used to be able to do all of that kind of thing on my own, it just doesn’t seem to be a possibility right now.  I spend my time trying to make sure Charlie’s health is okay (and mine too) and make sure that homework gets taken care of.  Those two things in themselves have become full time work.  Anyone that has any ideas or who would like to put together a fund raiser please contact me so that I can put you in touch with the non-profit that is working with us.  If anyone would like to donate to the account for Charlie’s kidney transplant you can do so by going to helphopelive.org.  When you get to the page there is a box in the upper right corner.  Type in Charlie Shivley and it will take you to Charlie’s page.  There is a button that says donate now, if you click there you can make a secure donation.  All donations are tax deductible.

Now I really am going to sign off.  Y’all have a great night and a bless week.

Charlie & Sherrie

Parking Fees for A Blind Person????

25 May

So yesterday we went to San Antonio College to meet with Charlie’s counselor and get registered for the Fall Semester.  We went from her office to the Bursar’s office to turn in his voucher for payment for his classes.  We were informed at that time that there was an additional new “fee” that everyone will be required to pay.  I asked what the $25 fee was for and was told it was a PARKING FEE.  I looked at the man in the window and said “I can’t justify paying a parking fee when we don’t even drive, or own a car.”  He said, “Sorry, but it’s a mandatory new fee that was  just voted on by the board on Tuesday.”  I then looked at him and said, “My husband, who is the student, is BLIND, therefore he does not drive.  How can you charge someone a parking fee if they don’t ever park here?”  The young man sent me upstairs to see the President of the college.  So we went to the third floor to talk to the President.  Well, the President wasn’t in, neither were any of the Vice Presidents….apparently it was a 4 day weekend instead of a 3 day one for all of them.  The office staff listened and told us that we could fill out a complaint form and someone would get back to us.   Then one of the staff people followed us out of the office and told us that she understands.. She advised us that she too has to pay and so does her son who goes to the college.  We then went to another office when they took all of our information and advised us that they had no answers to our concerns because this was a new fee and they din’t have any information on it.  The they told us they had had a complaint similar to ours on Tuesday and when they contacted the powers that be they were told to tell the woman not to worry about it because it hadn’t been voted on yet so it wasn’t  being enforced yet.  So, does that mean  if we had registered earlier in the week we wouldn’t have had to pay it????  I don’t think that was a very helpful story. This office also advised us that this FEE is a parking/access fee for the campus. It just made me more frustrated.  No one at the college had any information about this new “FEE”.  IF you are going to charge a fee you should be able to deal with questions.  We contacted the Director of Disability Services to see if she had any information and she also was totally unaware of the new FEE.  She started researching and is trying to contact Disability and Rehabilitative Services to see if the FEE can be included with all of the other fees that are included in tuition.  The young man at the Bursar’s office told us it is not able to be included in the voucher.   She is also trying to contact the people who do the rules to discuss the whole “Blind person having to pay a parking/access fee to the campus.   I thought it was bad when we heard that they will be charging people  $200 for a parking pass to the garage, and that doesn’t guarantee you a space!  So now they have the  $200 garage pass and a $25 fee on top of it.  They say they are going to use the money to fix the parking lots and access to campus.  Well the parking lots are getting destroyed by all of the construction traffic and equipment being hauled in and out to do all of the upgrades on the campus!  So have the construction people take care of  IT!  So, that was our excitement for yesterday.  We will keep you posted on how it turns out.

Today’s excitement has been the rain.  Poor Charlie got stuck at dialysis this morning because there was so much flooding in San Antonio.  They had to shut down the bus system and the flooding caused major delays and back up with VIA Trans (the people that transport Charlie to and from dialysis).  He wound up finally getting home around 1:00pm.  His normal pick up time is 11.   So this has been a long day for him.  He came home, ate and went to bed.  He’s pretty wiped out.  We are so looking forward to the KIDNEY and not having to do dialysis anymore.  It will be a wonderful change for Charlie.  No more having to get up at 4 or 5 and leave by 5:50, spend 3 hours on the machine and then come home wiped out.  That is his dream!

So please keep the following in prayer:  1. Charlie’s health.  2. Charlie’s foot.  3. KIDNEY.  4. Finances.  5. Fundraising.    If anyone would like to help with putting together a fundraiser or assisting with one, please contact us so that we can give you information on what to do.  We need all the help we can get with this as we have to raise upwards of $50,000.  This will cover the surgery, his after care visits, and the immunosuppresant drugs he will have to go on after he gets his kidney.  If anyone would like to donate please go to helphopelive.org   Once there you go to the box on the upper right side of the page, that says “Find a Patient.  Put in Robert Shivley and it will take you to his page.  On his page there is a secure link that will allow you to donate directly to his account.  There is also an address there that you can mail donations to. Donations made to the account are tax deductible.   Help Hope Live maintains an account for Charlie that will be used only for Transplant/Kidney related expenses.

Blessings to each of you.

Charlie & Sherrie

Frustration…

15 May

Today we went to Wound Care to see the doctor for Charlie’s foot.  Well, the area that was being treated is just about healed BUT……now there is a new area that last week looked like a small bruise.  Apparently it wasn’t a bruise, it was a blood blister.  It has burst and now we have another area to be treated.  It’s just a small area so it shouldn’t take long for it to heal.  Needless to say we are both frustrated.   Today’s appointment was scheduled early in the morning so that we could see the person that does the shoes for diabetics.  Last week when we made the appointment we asked (several times) if they were sure the person would be there.  We were assured that if he had a scheduled appointment he would be there.  Well….guess what….YEP….he never showed.  They called the company and they were told that he should be at the clinic (which he wasn’t) so the nurse called the person’s cell phone and he never picked up.  That was at about 9:30 and then they called again at 11:00, still no answer.  First of all I hope he is okay and that nothing happened to him, that being said, I really think they should let us know what is going on and why he was a no show.  We scheduled the appointment specifically for them to look at Charlie’s shoes and inserts to see if they think that might be the problem.  If it is it needs to be fixed now so that he can get healed and be able to walk again.

Anyway, please pray for healing for the foot.  Fundraising, a kidney.

Blessings to all.

Charlie & Sherrie

What More?

6 May

Good Afternoon Everyone,

Did you ever feel like you just needed to do more? There are days that I really feel like I just am not doing enough in this search for a kidney for Charlie.  I try to find venues where I can share his information with others and also get the word out about organ donation and live donor programs. I like talking to people about it and I love sharing Charlie’s story.  His is an inspiring tale.  He has done so much in his life time, now he sits and only thinks about it all.  He can’t go do the white water rapids, he would love to go fishing, but has no one to take him and no where to go.  It’s hard.  He thinks about his grandchildren and tries to imagine what they look like. Not a day goes by where he doesn’t talk about his daughters and how he would love to be able to see them.  He recants stories of when they were little and the things they did.  He remembers a video tape that he has of them when they were little but that is it. He says it’s getting hard to remember what they look like and that is very hard for him.  He will never see the grandchildren, he has a memory of what the oldest looked like when she was little but that is it.   He also thinks about his days as a firefighter/paramedic.  He remembers the accidents he went to, the fires he was at.  When he has trouble with his feet at night it wakes him and he can’t go back to sleep and these are some of the things that run through his mind.  His ears perk right up when he hears the sirens outside, it’s in his blood and you can’t get rid of that. My heart breaks for him when he starts roaming through his mind and talking about all of these things. I suppose that is because there is nothing that I can do to fix it.  I can listen and I can try to tell him what things look like now but I know that’s not quite the same.

We have contacted the American Diabetes Association and they are interested in talking with him about joining with them as a volunteer who can speak to people who are diabetic, with an emphasis on those that are newly diagnosed.  He wants them to know it’s not the end of their lives, unless they make it that way.  He wants them to know that if they take care of themselves they can live long and productive lives.  He wants them to see what the disease can and has done to him so that they will take it seriously.  So this week I intend to contact the local office (that’s what the national office asked us to do) and see what we have to do to get this going.  He needs to share, he needs to get out with people.

So, right now I am asking for prayer for the following:  1. Charlie’s health.  2. Charlie’s kidney. 3. Finances.  4. Fundraising. 5. Public speaking.

We love each of you and appreciate all of the comments, encouraging words and most importantly the prayers.  Thanks for your support.

We are looking for a kidney – are you our HERO? Please pass on this URL and information to family and friends.  Someone out there has the kidney we are looking for and the only way we are going to find it is to get the word out to people that we are looking.  Charlie is registered with the Texas Transplant Institute at Methodist Specialty and Transplant Hospital in San Antonio, TX.  To contact them call the Live Donor Program and let them know that you are interested in being tested to donate a kidney for Charlie Shivley.  They will talk to you about testing and about coming in for an “interview”.  You can also do that over the phone.  There is no charge to the person donating the organ.  You won’t have to pay for testing, surgery, hospital stay it’s all paid for.  IF you live outside of San Antonio or Texas for that matter you can do the preliminary testing where you live.  At one point you would have to come here, and there is assistance for transportation if –there is a financial need.  If you are interested contact the Living Kidney Donor Clinic at Texas Transplant Institute (210)575-4483.

Blessings to all.

Charlie & Sherrie

Busy Day

4 May

Good Morning Everyone,

Well, here it is, Saturday again.  Seems like it was just Saturday a minute ago.  Where does the time go, sometimes it just breezes right by, days just seem to all blend together.  Last weekend we had a great time at the South Texas Gospel Music Association convention, this week we are going to do the Youth Yard Sale at the church.  I am doing a Donor Awareness table there, going to get the word out about living donations and also Charlie’s need for a kidney, maybe today will be the day that our mystery donor will hear about it and get tested??  Who knows.  I figure that the more people I tell just increases the odds, right?  I sure hope so.  In the meantime the word will get out to more people about organ donation and live donor programs.  Sometimes I just don’t feel that I am doing enough to look for the kidney.  I know we are doing all that we can do but still, there are days when I am just searching for more.

Charlie has dialysis today, hopefully he will have a good session. Then it will be home to rest.  Tomorrow he has a Deacon’s meeting and it will be the donut social, the first Sunday of the month is always so busy!!  It will be a good day.

Well, I need to go help Charlie get ready for dialysis.  Have to coat his access site with lidocane so that he isn’t in pain when they stick him with those needles!  Then we wrap his arm in saran wrap so it doesn’t all rub off on his shirt sleeve.  The things we have to do!

So my friends, thanks for hanging in with us as we journey down the “road to a kidney”.  Praying each of you has a blessed weekend.  Keep on praying for us please and keep those words of encouragement coming, we need them now more than ever.

Blessings to all.

Charlie & Sherrie

Wow….What a Great Weekend!

28 Apr

Well this has been a busy weekend.  Praise God for music!  We went to the South Texas Gospel Music Association Convention on Saturday.  I went and set up a table with all of our Donor Awareness information and officially started Charlie’s fundraising campaign for his kidney transplant.  I spent 7 wonderful hours meeting some really great people, spreading the word about organ donation with an emphasis on Live Organ donations.  Charlie joined me right after dialysis and stayed until the end of the convention. We talked with people about Charlie and his need for a kidney and explained that we are going to have to raise upwards of $5o,ooo.  Several people donated to the cause.  We now have a donation jar at the table with information about Charlie and about the needs he has.  I am actively looking for places that I can go and speak or have an information table to be able to “get the word out”.  I am praying now about the possibility of going to other churches in the area and asking to speak on Donor issues.  I think yesterday proved to me that people just aren’t aware of what is available and they definitely have some ideas that just are not true, about organ donation and costs for live donations.  It’s an issue that we all seem to not want to bring up in conversation.  Well, I am bringing it up every chance that I get.  I thank God for yesterday, for being able to meet some wonderful people, being able to reunite with a couple of old friends, and for those with the kind hearts that donated.  HelpHOPELive has now given us some bracelets (the ones that are made out of rubber) that say HelpHOPELive.  We are offering them for a donation of $1.00.  It seems everyone is wearing them for lots of things now.  People like them.

In addition to being able to share our information we also went to the concert and awards ceremony, there were some spectacular groups and solo singers.  They are all members of the STGMA and they all are truly inspirational!  It was definitely a good time and you could feel the presence of the Holy Spirit in that church last night.  Charlie and I both were truly blessed. We left feeling more like the kidney is really closer than it has been before.

This Saturday (April 27) I am doing another Awareness table at the Yard Sale that the youth of our church is having.  If you live here in San Antonio please drop by Oak Ridge Baptist Church, 10915 Vance Jackson. I will be there around 8am.  I would love to see you and be able to share information with you.  If you have any questions please feel free to email us, we would be more than happy to answer them.   Come on out and see what gems you can find at the Yard Sale and let me meet those of you I don’t already know.

God is truly awesome, and I really feel like we are heading toward the kidney now.  Things are just happening that weren’t happening before.  I need more people to help me with fundraising.  If you would like to help you can email me or comment through the blog.  I think we have 3 South Texas Gospel Music Groups that are willing to do some kind of concert and are available in October.  I have to get with some people to talk about helping pull together either a barbecue plate sale or something with the groups as entertainment.  More on this to follow.   If you or anyone you know would like to donate you can through Charlie’s page with HelpHOPELive.  Just go to helphopelive.org and in the upper right corner you will see a spot that says: Find a Patient.  Just enter Charlie Shivley and it will take you to Charlie’s page.  You can donate via secure link there or I believe it gives an address to send donations to.  Donations are tax deductible when given through HelpHOPELive.

This week we will not have to go to wound care.  It will be the first week since last March that we have not been there.  It will seem strange I am sure, kind of like something will be missing.  It’s a definite sign of progress and a sign that we are finally heading toward the end of the foot journey, one that both Charlie and I are very ready for!  Next will be physical therapy so that Charlie can learn how to walk further than the bathroom!!  What a wonderful day that will be.

Again I say PRAISE GOD.  We are truly blessed.  Sometimes it’s hard to see the light through all of the daily “stuff” that is going on, but then the cloud rolls back and that ray of sun reaches down and touches you on the shoulders and warms you in a way that makes you remember that you are NOT in this all alone.  Thank you all for your prayers and being part of this journey.  I know I tell y’all how much we appreciate each of you and how we feel your prayers.  I wish there was another way to say it, but I just don’t know any other way.  Thank you from the bottom of our hearts.  All of you are like family and we really don’t know where we would be without your  love, prayers and words of encouragement.  There are days when this blog and the responses to it are what get both of us through.

Today’s prayer requests: Charlie’s foot.  Charlie’s Kidney.  Charlie’s tooth (we are still trying to get in to see someone).  Finances. Fundraising.  Donor Awareness events.

God’s blessings to all.

Charlie & Sherrie

Fundraising…..Please read.

23 Apr

                   Charlie   Charlie Shivley

Charlie Shivley also known as Robert “Charlie” Shivley is a Christian man born in Columbia, South Carolina.   Charlie and I were happily married on July 31, 2011.  He is a family man, father of 2 daughters, Melissa and Emily.  Both are married and have children.  He also has 2 stepchildren, Wayne and Kimberly.  Charlie led a very active life; he was an avid sky diver, rock climber, and did many white water rapids runs.  He was a fire fighter and paramedic in his hometown of Columbia with a goal of completing college to become a pastor.  In 1990 he was diagnosed with Type II Diabetes and now is in need of a lifesaving kidney transplant.

Charlie was not one to fuss over his healthcare so without taking the medication he needed, his diabetes worsened.  He began losing his sight in 2003 when he was diagnosed with Diabetic Retinopathy. By 2005 he was totally blind.  At the same time that he lost his sight he was diagnosed with end-stage renal disease (ESRD).  It was then that he was placed on dialysis.  He has now been on dialysis for 8 years and on the kidney transplant waiting list for the same amount of time. Dialysis is taking its toll.  He continues to decline in his health developing coronary heart disease and painful neuropathy in both his hands and feet and other complications too many to list here.  As you can imagine the bills that go along with all of these ailments are never ending.

This brings me to the purpose of this letter.  We have been advised that the pre- and post- transplant expenses could run around $50,000 or more. Even with insurance, we have come to realize that funding this surgery is a monumental task we cannot face alone.  In order to ease this financial burden, a fundraising campaign in Charlie’s honor has been established with HelpHOPELive (formerly NTAF), a nonprofit organization that has been assisting the transplant community for nearly 30 years.  All contributions are tax deductible, are held by HelpHOPELive in the South-Central Kidney Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. If you are able and would like to make a donation, please:

 

Make checks payable to:                   HelpHOPELive

Note in memo section:                      In honor of Charlie Shivley

Please send to:                                          HelpHOPELive

150 N. Radnor Chester Road, Suite F-120

Radnor, PA 19087

 

For credit card contributions, please call 800.642.8399 or visit helphopelive.org and enter Charlie Shivley in the “Find a Patient” box on the home page.

 

We are planning fundraisers and we could certainly use your time and energy.  Please call to volunteer.  I desperately hope to share many more years with my husband, to grow old together.  Your financial gifts will be greatly appreciated and will help us make it through this difficult time.

 

With sincere gratitude,

 

Sherrie Shivley (wife)

210-320-5011

Contributions are tax deductible to the extent allowed by the law. This campaign is administered by HelpHOPELive (National Transplant Assistance Fund, Inc.), a 501(c)(3) nonprofit providing fundraising assistance to transplant and catastrophic injury patients. Information: 800.642.8399.

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