Archive | January, 2014

What an Exciting Day!

13 Jan

So look what came to Charlie in email.

Dear Mr. Shively,

The American Kidney Fund appreciates your interest in our Fifth Annual Kidney Action Day on Capitol Hill. We would like to invite you to join us March 2014 in Washington, DC.

We hope you will accept our invitation. Please email Nina DiPadova to accept your invitation by January 13, 2014. Once we hear from you, we will begin to discuss travel and lodging information. Please note, we will coordinate your travel for you to arrive into Washington, DC the morning of March 4, 2014 and begin advocacy training that afternoon.

Because of your advocacy efforts, we continue to create awareness and help make a difference for individuals and families with, or at risk of developing kidney disease.

Sincerely,

Nikia Okoye

Director of Government Relations

SO WHAT DO YOU THINK CHARLIE’S ANSWER WAS???   YES!!!!!!!!!!  He is so excited. He’s never been to the capital before.  He keeps saying “we’re going to Washington”  Such excitement!  It’s going to be a fun trip as well as  a learning trip. He is looking forward to getting to know other advocates and hopefully having the opportunity to meet with some of the members of congress and let them know about the things that are a problem for kidney patients and their families. I am very proud of Charlie. He has been given several opportunities to speak with in the last few months and has done very well each time.  What better person to be an advocate than someone who has first hand knowledge of the disease and what it can do to you and to those you love.  Please keep him in prayer as this time draws closer.  We actually also got a phone call from the American Kidney Fund as we were on the way to go get Charlie’s books for the new semester which will start next week.  

We did make it to the school and were able to get the books and all of the supplies he should need (at least everything I could think of) to the tune of $446.  Books are SO EXPENSIVE.  I sure hope we use them ALOT this semester.  One of the books was $167.  I looked for the gold leaf or the engraved pages or something, but nope, it’s just a paperback text book. We are both looking forward to the adventures that this semester will bring.  We know there is going to be a ton of writing in the English Comp class but Charlie  made it through Comp 1 with an A so hopefully he will do well this semester too.  He also has a speech class, that one should be interesting. He does well with public speaking so we aren’t real worried about that one.  The third class he has is Humanities, now that one may be a bit challenging, but I think we are both ready for it.  I am seeing LOTS of note taking this semester and perhaps we will record the lectures too, we’ll see.

As usual we are still waiting and praying for the kidney to come.  God is in control and we are patiently waiting for HIS timing with this. We are ready any time that he is.  Each day we awaken with the question “will today be the day?”  Who knows.  It’s been a long 9 years but Charlie has taken it all in stride. He is more than ready to vacate his dialysis chair and live a more fulfilling life. It would be good to be able to plan a vacation without having to schedule dialysis treatments during it, but if that’ s what’s got to be done then we do it. Look at all of the new people we can meet at a new dialysis unit.  Each of them has a story, a personal walk and each of their stories brings them closer together.

We are trying to put together a cookbook to be used as a fundraiser. We are asking if anyone has any healthy recipes that they would like to contribute please email them to Sherrie at gsservant @gmail.com  she will compile them and we will let people know when the book is put together.

Thanks again for prayers and notes. We love each of you and wish you a prosperous and blessed new year~

Charlie & Sherrie

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