Archive | December, 2012

We Are Back….

31 Dec

Hi Everyone,

Well, here we are, end of another year.  So far no kidney.  Kind of disappointing because at the beginning of the year all of the doctors and the transplant people said….”this will be the year”. 

Let’s see if I can bring everyone up to speed here.  When Charlie started back to school in August we got way behind in a lot of things.  Unfortunately the Blog was one of them.  I will be keeping people up to date on a regular basis in 2013.  Charlie is doing okay.  As I said, he is rather disappoitted about going into a 9th year of waiting.  Dialysis gets more draining each time.  From August to now Charlie has had to have his acess cleaned as he was having a tremendous amount of bleeding each time he did dialysis, turned out there was a clot. They went in and took care of it and stented his artery.  This seems to have fixed the problem.  He completed another semester at San Antonio College:  He got a B in English and an A in First Aid.  He has a 3.5 GPA.  He has enrolled for 3 classes next semester: World Religion, Drama, and English Composition.  Should prove to be a very interesting and busy semester.  Now, let’s see what I can tell you about THE FOOT.  As you know we have been doing wound care on the left foot since last December (who would ever have thought that we would still be working on it a year later???).  At this point we are down to one ulcer.  This one got really bad, almost down to the bone.  Charlie has been in a wheelchair since last June.  He is not supposed to put any weight on the foot as this just increases the ulcer.  The one that we are still working on has now healed enough so that there is pink tissue and it looks great.  The problem with it is that a callous has developed around it, several attempts to trim it to promote the skin growing back together have failed.  He has been in hyperbarics since April (we go there on Monday, Wednesday and Friday for a two and a half hour session and do Tuesday, Thursday and Saturday for 3 1/2 hours in dialysis).  This is really wearing on him too.  He has recently been approved to start a human cell grafting process on the wound.  The hope is that this will cause the skin cells to grow and finally close the wound.  At this point we are just waiting on paperwork to be done and a grant approval to help pay for the copay.  We should know something within the next week.  Once the paperwork is complete they will order the grafting material and begin that process.  He will then stop the hyperbarics and we will have once a week visits at wound care.  That will be WONDERFUL!!! 

The newest challenge Charlie is facing is his eyes.  He knew about 2 years ago that the time was coming that a decision would have to be made regarding the eyes.  For the last few months the pain in his eyes has been getting progressively worse, because they are deteriorating.  This pain wakes him up at night and is bad enough that he cries.  We went to the eye surgeon on December 21st to discuss courses of action to try and relieve the pain.  The doctor gave Charlie 2 options:  1.  Drops (two different kinds) daily for a month to see if it helps.  2. Take the eyes out.  Charlie opted to use the drops first as he really doesn’t want to have the eyes removed.  We have an appointment on January 21st to discuss things further.  The eyes seemed to respond in the beginning and the pain wasn’t as bad, but yesterday and today the pain has returned.  He is praying hard about his decision.   Now the pain killers (Tylenol, Hydrocodone, Vicodin) have not worked and the drops are not working so he is thinking that he will probably have to just have them removed.  The doctor said he could have it done as early as February.  It’s an out patient procedure, done in their surgical center.  Doctor said the first few days after the surgery are painful, but after that he should not experiance any more pain in the eyes.  They will do the eyes seperately.  Charlie will get to choose the eye color….right now he says he wants piercing blue eyes. 

We have another grandchild on the way.  Our son and daughter-in-law are due in March (March 17th).  They are having a baby boy.  This will bring the grand total to 8!!  4 of which will have birthdays in March….busy month!!  We are blessed to have 3 of the 4 within visiting distance.  We get to see Dalton (our 4yr old grandson) most often.  He is such a cutie.  Always has something to say to keep us smiling.  He is in pre-k this year and loves fire engines.  Tho

%d bloggers like this: